Sunday, April 5, 2009
Quiet day. Long day. Tired day. Eric's still doing well physically, but he's had insomnia for two or three days now, even more, and he's completely frustrated, not to mention fatigued. He just can't sleep. The trach ties around his neck are too tight, but he has to wait till tomorrow when he gets his new trach for them to change the ties. Despite a long foot and hand massage from Mom, winning a game of Yahtzee with Drew and Dad, SpongeBob on TV, jazz CDs, and his favorite nurse Randy on duty, Eric is not happy today. He wants to be out of the bed, out of ICU, out of the hospital. He wants to sit in the sunshine awhile, feel a breeze, eat something besides ice chips, say something. He wants to sleep. As patient as my son is, he's reaching the end of his IV tubing. We're getting close to these things, but Eric is having trouble seeing beyond the frustration of here and now. He's still being incredibly patient and cooperative, but I can see and sense the underlying depression. Lately, we're getting excited about the slightest smile on Eric's face. Like when he rolled his second "Yahtzee" in one game.