Eric has been off the ventilator for eleven days now and doing fantastic. Nevertheless, when I informed Dr. Sockrider, she requested a sleep study to verify that he's okay sleeping without it. She wanted us to come to Houston to do this, but I said we've got sleep labs right here in Lake Charles. The sleep center at Memorial Hospital is scheduling into September, but, with a call from our friend Dr. Thompson, they squeezed us in with a cancellation tomorrow night. I'm not worried that he needs the vent to sleep. But I do hope the study will shed some light as to why he claims to be so sleepless every night. According to Eric, he awakens each night between midnight and 2:00, and just lays there the rest of the night. He doesn't know why.
We ran into Dr. Thompson at Memorial today while we were there pre-registering Eric for tomorrow night's study. He could tell Eric had gained weight (13 pounds since we've been home). And he said he thinks Eric is more than ready to lose the trach. Let's hope the Houston doctors concur.
PT/OT went well today. Eric continues to get stronger every day. Percussion/marimba lessons are challenging for Eric. He's not used to playing chords or trying to look down at the keys and the music at the same time. But he's giving it a shot.
Post PT Sonic snack . . . Super Sonic Jalapeno Cheeseburger and an apple limeade.
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5 comments:
I'm amazed at Eric's progress. I shouldn't be because this is what lots of people have been praying for. God is so good and so faithful. What a testimony!
Maybe Sonic has a chamomile shake for bedtime...I sure hope they're passing over some cash for all this advertising!
Love ya!
amazing progress!
drum line will be a great way for Eric to enjoy his musical ability.
Go Eric!
And sleep too...
Anne
I'm so grateful to God to hear that Eric has been able to do without the vent several nights in a row! yay!
Hey, this is Dylan from church. In case you weren't aware, I played melodic percussion (xylophone, etc.) in the band at school. An idea my mom suggested is to take piano lessons with Keith Chamberlain. They are very similar instruments (the only big difference being that you play one with fingers and the other with mallets) and it should really help with reading chords. The only reason I joined the band in the first place was because they were looking for melodic players and found out that I could play piano.
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